Little ayah instagram

Ayah Mithika Lundt (@little.ayah) • Instagram photos and videos

Ayah’s SMA journey. #friendsoflittleayah ♡5 doses of Spinraza Zolgensma at 20 Months ♡SMA Awareness• Advocacy · 276 posts · 38.6K followers · 421 following.

Ayah Mithika Lundt on Instagram

Ayah Mithika Lundt on Instagram: “Ayah started school!!It’s been a week now and she is doing great! She loves kids and she has already made a friend. We (the parents) have our worries but this girl is unstoppable! I am learning so much from this little girl…have a lovely week lovely people.#friendsoflittleayah #spinalmuscularatrophy #spinraza #zolgensma #curesma #risdiplam #gratefulheart”

21. feb. 2022 — 1219 Likes, 64 Comments – Ayah Mithika Lundt (@little.ayah) on Instagram: “Ayah started school!! It’s been a week now and she is doing great …

1,223 Likes, 64 Comments – Ayah Mithika Lundt (@little.ayah) on Instagram: “Ayah started school!!It’s been a week now and she is doing great! She loves kids and she has already made a friend. We (the parents) have our worries but this girl is unstoppable! I am learning so much from this little girl…have a lovely week lovely people.#friendsoflittleayah #spinalmuscularatrophy #spinraza #zolgensma #curesma #risdiplam #gratefulheart”

Ayah Mithika Lundt on Instagram

Ayah Mithika Lundt på Instagram: “*Get to know Ayah*For those who ask if Ayah speaks, she is a chatter box 😄I know that SMA affects speech too but this girl is beating the odds. Her favourite word is ‘tak’ (Thank you)Her vocabulary:Tak (Thank you)Nej tak (no,thank you)Ja tak (yes,thank you)Mama, papa, farfar (grandpa) farmor (grandma), iiya for Amira😀, giraffe,elephant,water, yeah, eat,yay,kiss,oh!, peek a boo,spoon..and a few more.She can sing itsy bitsy spider and the wheels on the bus in Danish to the end. Please keep sharing and tag friends so that they can help us share her story.#friendsoflittleayah #helpayah #zolgensma #sma #love #life #createawareness #spinraza #sma #community #friends #village #together #wecan”

20. apr. 2021 — 1837 Likes, 78 Comments – Ayah Mithika Lundt (@little.ayah) on Instagram: “*Get to know Ayah* For those who ask if Ayah speaks, …

1,834 Likes, 78 Comments – Ayah Mithika Lundt (@little.ayah) on Instagram: “*Get to know Ayah*For those who ask if Ayah speaks, she is a chatter box 😄I know that SMA affects speech too but this girl is beating the odds. Her favourite word is ‘tak’ (Thank you)Her vocabulary:Tak (Thank you)Nej tak (no,thank you)Ja tak (yes,thank you)Mama, papa, farfar (grandpa) farmor (grandma), iiya for Amira😀, giraffe,elephant,water, yeah, eat,yay,kiss,oh!, peek a boo,spoon..and a few more.She can sing itsy bitsy spider and the wheels on the bus in Danish to the end. Please keep sharing and tag friends so that they can help us share her story.#friendsoflittleayah #helpayah #zolgensma #sma #love #life #createawareness #spinraza #sma #community #friends #village #together #wecan”

lexx Kinyua on Instagram: “@little.ayah needs our help.The …

lexx Kinyua on Instagram: “@little.ayah needs our help.The family has been able to raise Ksh 206M but need to get to Ksh 270M for treatment.Please visit @little.ayah ig page and donate to give her a chance at normal life.God bless you as you give.🙏#friendsoflittleayah#helpayah”

1 Likes, 2 Comments – lexx Kinyua (@lexxkinyua) on Instagram: “@little.ayah needs our help.The family has been able to raise Ksh 206M but need to get to Ksh …

lexx Kinyua (@lexxkinyua) on Instagram: “@little.ayah needs our help.The family has been able to raise Ksh 206M but need to get to Ksh 270M for treatment.Please visit @little.ayah ig page and donate to give her a chance at normal life.God bless you as you give.🙏#friendsoflittleayah#helpayah”

Ayah Mithika Lundt on Instagram: “As Jalas said, kidogo …

Ayah Mithika Lundt on Instagram: “As Jalas said, kidogo kidogo hujaza kibaba. Your followers did as you requested and we have had about 3k of them donate towards Ayah’s fundraising. God bless you @jalangoo ,thank you💕💕. #friendsoflittleayah please let’s thank Jalas and his followers on the comment section. Paybill:8030789 acc: AyahGoFundMe link on bio#friendsoflittleayah #zolgensma #spinraza #sma #curesma #cure #treat #sma #createawareness #kenyan #together #community #wecandoit #volunteer #love #tag”

1439 Likes, 96 Comments – Ayah Mithika Lundt (@little.ayah) on Instagram: “As Jalas said, kidogo kidogo hujaza kibaba. Your followers did as you requested …

1,439 Likes, 96 Comments – Ayah Mithika Lundt (@little.ayah) on Instagram: “As Jalas said, kidogo kidogo hujaza kibaba. Your followers did as you requested and we have had about 3k of them donate towards Ayah’s fundraising. God bless you @jalangoo ,thank you💕💕. #friendsoflittleayah please let’s thank Jalas and his followers on the comment section. Paybill:8030789 acc: AyahGoFundMe link on bio#friendsoflittleayah #zolgensma #spinraza #sma #curesma #cure #treat #sma #createawareness #kenyan #together #community #wecandoit #volunteer #love #tag”

Having a child affected by SMA has changed the way i look at …

Ayah Mithika Lundt on Instagram: “Having a child affected by SMA has changed the way i look at life. You see, a few months ago i had my life figured out. Two adorable healthy kids,a loving and supportive partner, our business plan going as planned….i mean,what could possibly go wrong?And then,everything came crushing! When the results came in-via a call by the way,thanks to covid-19, nothing seemed to make sense anymore. I knew something was wrong because i am the one who insisted on her getting checked but i wasn’t prepared for SMA. What is SMA?, we asked…to cut the long story short,the neurologist said that Ayah is a type 2 or a sitter. What does that even mean??? We asked. Ayah might not be able to walk, she said.I immediately went into ‘research mode’. I was determined to know everything about this monster and find ways to help Ayah. Meetings with neurologists, calls abroad, talking to SMA organisations, calling affected parents….i did everything i could and i continue to do so. It is hard,it is very hard to deal with this situation but while i wish i never got to know about SMA,i do. It exists and if it’s not Ayah,then who? I would never wish any parent to go through this.But in this difficulty lies hope. Hope for a brighter tomorrow. Hope that,we will raise the money needed for her treatment because we have an incredibly supportive network, thank you. Hope that,Ayah will live a normal life.#friendsoflittleayah #togetherforlittleayah#sma#zolgensma”

20. jan. 2021 — 833 Likes, 77 Comments – Ayah Mithika Lundt (@little.ayah) on Instagram: “Having a child affected by SMA has changed the way i look at life.

CNN on Instagram: “Ayah Lundt, 14 months old, was …

CNN på Instagram: “Ayah Lundt, 14 months old, was diagnosed with spinal muscular atrophy, a rare genetic disease. @little.ayah’s parents are in a race against time to raise $2 million for a one-time, potentially life-saving treatment before she turns 2. The treatment, called Zolgensma, is referred to as the world’s most expensive drug.⁠⁠”I think about the cost every day, and it weighs me down,” her mother, Mary Mithika, said through tears before taking a break to compose herself. “And then I look at Ayah and see her getting worse. As a parent, what would you do if you knew there’s something out there that can save your child?”⁠⁠(📸: Charles Njuguna/@2charles)”

Ayah Lundt, 14 months old, was diagnosed with spinal muscular atrophy, a rare genetic disease. @little.ayah’s parents… more. View all 8,365 comments.

157K Likes, 8,349 Comments – CNN (@cnn) on Instagram: “Ayah Lundt, 14 months old, was diagnosed with spinal muscular atrophy, a rare genetic disease. @little.ayah’s parents are in a race against time to raise $2 million for a one-time, potentially life-saving treatment before she turns 2. The treatment, called Zolgensma, is referred to as the world’s most expensive drug.⁠⁠”I think about the cost every day, and it weighs me down,” her mother, Mary Mithika, said through tears before taking a break to compose herself. “And then I look at Ayah and see her getting worse. As a parent, what would you do if you knew there’s something out there that can save your child?”⁠⁠(📸: Charles Njuguna/@2charles)”

Ayah (@ayah.sal) • Instagram photos and videos

Ayah. ♡ Mama to a little princess. Jouri’s profile picture. Jouri. Antalya ‘s profile picture. Antalya. Reads’s profile picture. Reads.

Help Little Ayah | Rønne – Facebook

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